Marti’s MS Life
Chronic illness changed my life, but it didn’t take it.
When people hear “MS,” they often picture fatigue or numbness. What they don’t see is everything else.
The pain that stabs like lightning through my face, what I now know is trigeminal neuralgia, one of the most painful neurological conditions known.
The brain surgery I underwent just to get relief.
The flares that steal movement, focus, and peace without warning.
The medications that keep my nervous system in check, and the endless side effects they bring.
The behind-the-scenes grind: paperwork, authorizations, denials, appointments, scheduling, rescheduling. It’s a second full-time job.
And yet, I rise. Not out of ease, but out of faith, fight, and community. Because I know someone else needs to see what survival and success can look like side-by-side.
The Day-to-Day Truth
Some days I move with ease. Other days, I need help. There are flares. There’s brain fog. There’s physical pain and emotional fatigue.
And yet, I speak. I lead. I plan. I dance. I make space for both the grace and the grief.
Some days I move with ease. Other days, I need help. There are flares. There’s brain fog. There’s physical pain and emotional fatigue.
And yet, I speak. I lead. I plan. I dance. I make space for both the grace and the grief.
Why I Started Marti’s MS Life
In 2019, I went public with my diagnosis and launched Marti’s MS Life, a space to speak freely about the reality of living with this disease as a Black woman.
I was done pretending. Done masking. I needed a space to be honest, and to help others feel seen in a world that often looks away.
Since then, this platform has become a community, a resource, and a space of solidarity for MS warriors, caregivers, allies, and those just beginning to ask, “What now?”
My Advocacy in Action
My work has opened doors I never imagined, but not for me alone. For us.
I now sit on the Board of Directors for the National MS Society’s Los Angeles chapter.
I partner with Genentech and other companies to help shift how chronic illness is represented.
I’ve appeared in national campaigns, including the National MS Society’s 2022 domestic campaign, which premiered in Times Square.
I co-host the annual MS Brunch Fundraiser alongside my friend Chelsea Hettrick, raising money and momentum for warriors like us.
And every year, I organize a team for the MS Walk at the Rose Bowl, showing up with energy, love, and a reminder that we are still here, still walking.
Everyday Advocacy, Online
For a lot of people, social media is a highlight reel. For me, it’s a lifeline.
Marti’s MS Life lives loudest online, across Instagram, TikTok, YouTube, and Substack, where I share the real, daily rhythms of life with MS. Not just the wins, but the mess. The meds. The flares. The small victories. The faith and the frustration.
It’s where I document what this disease actually feels like in a Black woman’s body, and where I speak up for those still finding their voice.
What You’ll see:
Behind-the-scenes looks at treatment days
What it’s like to advocate for care in broken systems
Unfiltered moments of pain, healing, joy, and everything in between
Reflections, resources, and real talk through my Substack newsletter
Humor, education, and awareness through storytelling on Instagram